It seems that with our blog babies growing up into real people we are hitting snags not necessarily expected when we were pregnant or dealing with sleepless baby nights.
I’m writing to check in and see if anyone wants to chat over similar issues.
My oldest and youngest are great! Everly is 4, beautiful inside and out with the self confidence I only dream I had. “Everly you’re looking so great in your new dress” is usually met with “I know”. She is the cheerleader our family needs and is always there to lift up her siblings on their hard days. She knows what she wants and isn’t afraid to ask for it either. Emilia is 10 months old and has a heart as big as her toothy smile. The girl does not stop moving. She climbs everything, started taking steps at nine months, and regularly crouches and then literally just launches herself into the air for shits and giggles.
Then there are our middles.
Abel is a sweet boy trying his best in a world that does not make sense to him. After almost two years of trying to get answers I finally received his diagnosis last week. Generalised and social anxiety, OCD, severe sensory processing and the most pressing Tourette syndrome. His social anxiety is made worse by his OCD as his rigidity and compulsions make it very challenging for him to connect to peers. He has many many verbal and physical rituals that can exhausting for both him and us as well. His sensory challenges have been an issue for years but emerging out of that have been his motor (and verbal) tics. For so long I thought they were a reaction to sensory disturbances. For example he has a tic where he puts his shoulder to his ear and scratches it. I always thought his clothes or something itched his neck. His tics are becoming more obvious however and now he is at the age where he is starting to become aware of them himself. He has several facial grimaces and tongue thrusts and eye rolls and twitches that get in the way of conversation so that his already nervous self retreats even more from moments with peers. Luckily we have answers now, the sense of relief that came with the diagnosis was unexpected for me. The child psychiatrist who diagnosed and treats him told me that this combination can be extremely challenging for teenage boys and that she is very happy we are on a path now of getting him the tools he needs to succeed.
Indira. Indie. Pinnie. Innie. Pin pin. Our girl. She is 2 in a week. From early on Indie failed to meet milestone after milestone. I was a bit concerned but ultimately I wasn’t very stressed because she was my “easy” baby. She was so content and chubby. We thought maybe she never rolled and wasn’t crawling because she was too chubby. We thought the fact that she could sit for hours in an exersaucer or lay on the ground without moving was a sign of a happy easy going baby. At 18 months she had just started crawling a couple of months earlier, still couldn’t roll and had suddenly inexplicably lost 4lbs since 12 months. At 12 months she was 24lbs and at 18 she was 20lbs. We knew she was getting pickier and had started to chew and spit her food but we chalked it up to quirky baby and were not concerned at all when our family dr suggested a paediatrician referral. Here in Canada the system is much different and pediatricians are only with referral for issues not for typical children. We were taken aback by the concern we were met with from the ped. She ordered blood and genetic tests right away. I was at an indoor playground with the kids when she called back telling me there was an emergency and to take Indie to the ER right away. During the blood work the lab had detected an incidental extreme low blood sugar. Looking back she had a lot of low blood sugar symptoms even early on such as her 4 hour naps that she had to be woken from. We took her to the er and she was admitted to the childrens hospital for all of March. During that time she lost more weight and was down to about 18lbs. Her height was the height of a 9 month old and so her weight loss hadn’t been obvious as she was still a bit chubby. She was diagnosed with Global developmental delays, failure to thrive and hypoglycemia. She was given an ng tube and will have her surgery for a g tube in september. We have her medical low blood sugars under control for the most part and her height is slowly improving with the tube feeds. She is still the height of an 11 month old and is not on the charts whatsoever for height, not even 3rd percentile, just not even on the chart. She is almost exclusively tube fed. She chews and spits anything she eats now. We are waiting for an Autism assessment for her but the year long wait is excruciating especially as her pediatrican has said he has no doubt she is ASD. The waits in public health are brutal. She is 2 and barely walking, just started 3 weeks ago, just said mama and dada finally at 23 months, has limited understanding and extremely concerning behavioural and social issues but she has zero services right now. Shes on a waitlist for slp and ot but that won’t be until at least october even though we had her referred in May.
It’s been a crazy summer but I know some of you are going through similar things! Cade works out of town for a week at a time then home 1-3 days so it has been an adventure keeping four littles alive and happy with all of our appointments and playgroups and playdates and zoo trips ect.
