Acknowledgement

Last night I tried to explain to a very nice and very kind woman that I feel changed since the death of my daughter Julia. I ended up feeling frustrated and disappointed in my ability to really articulate my experience. As kind as she is, it was difficult for me to listen to her share how it took her five years to get to a better place after the death of her very loved sister who died, perhaps in the last decade. Next time I may ask her about the time line, but I know her sister was older, a senior. The words from this blog spoke to me about the feelings I also experience.

bereavedparentsblog's avatarBereaved Parents

Grief does not demand pity; it requests acknowledgement.

Grief is not simply a feeling, it is a deep indescribable anguish of the soul that permeates our entire being. It exists whenever there is trauma and loss. I do not say this to diminish anyone’s grief in the loss of a beloved pet, a mate, etc.; however, there is no grief that compares with the loss of a child. You do not get over it, you do not move on from it. You only move forward with it. The excruciating pain becomes a lifelong companion.

Bereaved parents are not wallowing in self-pity. A part of their soul has been violently torn from them. Yes, they go on and find a manner of functioning that may appear to the outsider as if they have ‘gotten over it’; but let me be frank: NO! They have not! Appearances can be deceiving. Any unexpected…

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Every Day is Mother’s Day

I have been silent for a very long time. Many thoughts have been whirling in my head and as I approach another Mother’s Day without you Julia I wanted to write something. I haven’t, but this post from another mother spoke to me and I am sharing it because I think it’s very true. Every day is Mother’s Day – just not the flowers and presents kind of Mother’s Day.

pathfinder's avatarofmenandmountains

My mother used to say “every day is mother’s day.”    As a child I never knew what to make of that.   I am loath to admit I thought she meant that we were supposed to put her up on a pedestal, bring her flowers and candy every day.   Maybe we should have.   She never explained herself.   She would have a look that my young eyes could not discern and later with repetition of the phrase, I came to ignore it.

There were things I made for my mother that I wanted to give her.  They were met with mixed reactions.   I had my feelings hurt.  There were things that I gave my mother because I thought she expected them and when she would gush over them it felt hollow.

I wonder how many times I have done that to my own children?    My…

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What They Don’t Ask About

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Here I am at another holiday season and someone actually gave me a kind word by saying it must be hard this time of year because of Julia; about how Julia would not be coming home for the holidays and that must make it hard. My reply was it’s difficult all of the time, but the holiday time is a different kind of difficult. She agreed, and we settled on the word different. Then we talked about her new relationship and how happy she seems.

She went home to her new boyfriend and the ability to call her daughter, even though it’s long distance.

I went home thinking about how I wish I could explain that yes, the holidays are hard, as my daughter would have come home, but the rest of the year is equally hard. Do people really believe that I only think about Julia during Thanksgiving or the Christmas/Chanukah season or other special holidays? How do I tell people that I think of her every day? The truth is that no one asks, so I don’t tell anyone how much I miss her.

Clearly some people think about how it might be difficult for a grieving parent at the holiday season. Some people actually acknowledge our daughter’s absence. Most don’t. It really is as if she had never existed. I can understand that kind of thinking from those who never knew her or didn’t know her well, but it’s hardest from family and close friends.

Sometimes I wish I could just say I’d like you to try not talking to your son or daughter for a whole year. Try not calling, texting, emailing, using Facebook, Twitter or sending a letter or card. Try it and then get back to me. Then try it again for another year. Ask me if the holidays are hard after you’ve lived through one, two or three years of your child’s silence.

It’s not the special days; it’s the ordinary days where Julia is missing from her life and mine. As grateful as I am to have had her as my daughter for 29 years, I just plain miss her. I miss her in all the ordinary ways that was her life and mine.

I wish I could tell people it’s the ordinary they will miss most. It’s the ordinary and simple days that people don’t ask about.

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Three Years Tomorrow

March 14, 2016

Dear Beautiful Daughter,

How much I miss you!  Every time I read this poem my heart breaks open and I cry.  How much I wish I could live up to this poem, and I will try.  I am trying, but it still seems impossible that you aren’t here and that I am forced to live out the rest of my days without you, without your laughter, without your thoughtful kindness, without YOU.

Right now, I don’t care how many people see how much I still hurt to have you die.  I cover it up pretty well for most people, although even I know I’m not the same.  I’m know there are those who whisper, “She’s not the same since her daughter died.”  And they don’t even see the painful parts when I am alone and can actually allow myself to feel what I feel.  All I can say is let them talk, let them have their thoughts, and if they ever have to walk this walk, I will remember how brutally devastating your death has been for me and I will be kind.

There are several who know what your death has meant to me and I value those brave souls who really have been my companions.

But…

There is no moving on.  There is no getting over this.  I carry you with me and will carry you with me, with all this immense sorrow, until the day I die because you are also my joy.

You are my Joy, my Jewel, my Jules.

Love,

Mom

Julia 3rd Anniversary

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Thanksgiving 2015

“Grief turns out to be a place none of us know until we reach it. We anticipate (we know) that someone close to us could die, but we do not look beyond the few days or weeks that immediately follow such an imagined death. We misconstrue the nature of even those few days or weeks. We might expect if the death is sudden to feel shock. We do not expect the shock to be obliterative, dislocating to both body and mind. We might expect that we will be prostrate, inconsolable, crazy with loss. We do not expect to be literally crazy, cool customers who believe that their husband is about to return and need his shoes. In the version of grief we imagine, the model will be “healing.” A certain forward movement will prevail. The worst days will be the earliest days. We imagine that the moment to most severely test us will be the funeral, after which this hypothetical healing will take place. When we anticipate the funeral we wonder about failing to “get through it,” rise to the occasion, exhibit the “strength” that invariably gets mentioned as the correct response to death. We anticipate needing to steel ourselves the for the moment: will I be able to greet people, will I be able to leave the scene, will I be able even to get dressed that day? We have no way of knowing that this will not be the issue. We have no way of knowing that the funeral itself will be anodyne, a kind of narcotic regression in which we are wrapped in the care of others and the gravity and meaning of the occasion. Nor can we know ahead of the fact (and here lies the heart of the difference between grief as we imagine it and grief as it is) the unending absence that follows, the void, the very opposite of meaning, the relentless succession of moments during which we will confront the experience of meaninglessness itself.”

Joan Didion, The Year of Magical Thinking

Turkey

 

 

 

 

 

Dear Julia,

This was our third Thanksgiving without you. Oh, how I missed the anticipation of your coming home, or your dad and I coming to your house.  I missed your presence, your voice, your laugh, your very being, the all of you. I missed hearing the adventures you had been up to or were planning.

I wish someone would just say, I bet you miss her.

YES, I would answer. I sure do. I sure do.

I disagree with Didion’s last sentence in the quote above. Oh, I agree with her description of the void, as there is an ugly, huge void without you. I agree with how she leads into the phrase “the long succession of moments” but it seems to me the long succession of moments only becomes meaningless when no one mentions your name, when no one remembers you, when no one acknowledges you or the love that exists between us. Our love didn’t die. The others, the silent ones who turn away from the raw truth that you are always in my heart, and in your dad’s, your sister’s and brother’s hearts every day, those others are the ones that make it meaningless.

I don’t like living without you. I don’t like that you died, but what you gave me as your mother and what I, hopefully, gave you as my daughter has more meaning and more sense than anything anyone can describe.

I miss you.  I will always miss you.

 

Posted in Coping with the death of a child, Death of a child, Death of Adult Chil, Grieving the loss of a child | Tagged , , , | 1 Comment

how to fix it.

Thank you Emma for posting this video of Megan on your site. It is so refreshing. I am so tired of people who want to comfort me with a spiritual bypass (pass over my grief by pointing to some religious cliche that makes them feel better) or cover me with the Cloak of Invisibility so they don’t have to witness me struggle with the pain I feel about my daughter. I have needed people to be with me in my grief – to sit with me in the mud. A few have been there for me all this way and I value those compassionate and courageous souls more than they will ever know. Thank you.

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The Paradox of Healing

(reblogged from NeverforgetAndrew.com)

Perry Grosser’s post touched me, just as this poem touched him.  Thank you Perry for letting me share it. I have to say though that the hardest thing for me in this world is putting “our pain and sorrow into a pocket, or a cubbie,”  It just won’t fit.

The Paradox of Healing

The Paradox of Healing is that it is both holding on and letting go.andrew
We hold on to memories, and we let them go.
We hold on to feelings, and we let them go.
We hold on to an old way of being because the self we still are resides there,
And we let go to a new way of being, so the self can live on.
Poem by Molly Fumia (through our dear friend Emily)

I read this poem and it touches me so deeply – it is so meaningful. We all want to and need to heal. We all want to keep moving forward with our lives – even after the loss of our children. But we don’t want to forget them, and we want them to be there as we forward with our lives. We want to keep them in our hearts and in our minds, but we don’t want our memories and love of our children to debilitate us, stifle us, and stop us in our paths. We want people to know that there is a permanent hole in our hearts, one that will never heal or get better – even with time. But we also want to love others and be open to love with our entire unconditional heart.

When we smile and laugh, some people seem to think we are better. But we are not. When we sell our home and move on to another home, people say it is good that we are leaving those memories behind. But we are not. When we have another child, people think the new child replaces the love and pain we have for our lost child. But it does not.

We are like a broken statue or torn painting. They can be glued and fixed, retouched and repainted, fixed to the point of looking new. But it is still broken and damaged. No matter what you do, no matter how hard you try, it will still be in need of repair, and will forever be damaged.

Healing from a wound or an injury is something that can be measured. Healing from a car accAndrew2ident or from a fall can be quantified, measured and tracked. That type of healing is a trip. It has a beginning and hopefully an end. It can be short, or very long, but there is an end in sight, and a person can achieve healing. After it, you can go back to who you were, and put it behind you.

But the tragedy that we have endured, the loss of a child, is not a trip. It is a journey. A journey that we will be on for the rest of our lives. Struggling with for the rest of our lives. There is no end. There is no cure. There is no mile marker 0 at the end of the road that we wish to see one day. It is an endless journey of grief. Of course the grief lessens over time, we cry less, we open up more, we learn to live with our loss. But we never heal. The road that we are on has no happy ending, no happy ever after, it doesn’t end.

During the never-ending healing process we have our memories and our feelings. Some of them fade over time, some of them we learn to cherish more and re-tell them as often as we can. But we also make room for more memories, newer memories, newer feelings. We try not to push out the old, but we have to make room for the new. We don’t want to forget, we don’t want to move on – but we learn that we cannot live if we cannot make room for love and for new memories in our lives.

That is the paradox that we live with every hour, every day, every month, every year. What Andrew3can we remember, and what can we chose to forget. Or do we choose not to forget anything, and just make more room in our lives for the new? Those who do not make room for the new will never heal, unfortunately. Those who stop living the day their child died – have died as well. We want to move on in our children’s honor, and to honor their memories – that is what they would have wanted. We need to honor their lives, cherish their memories, and put our pain and sorrow into a pocket, or a cubbie, that we know is always there, but that does not stop us from living the lives our children could not. That is the paradox of healing.

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Lillies in July

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Julia,

I think of you every day. I miss you terribly and there is no way to even try to describe the void that your absence has created in my life and heart.

Two weeks ago the lilies that you gave me years ago bloomed. This year as they started producing their blooms I thought about all the gifts you’ve given me throughout your life, not material gifts but you, who you were and who you grew up to be.

You were always an explorer, even at an early age. We still like to tell the story of how you climbed out of your crib, walked out the front door and down our little lane at less than 2 years of age. Who knew what you were thinking, but you were curious. Your older sister and brother were watching you. When your sister and brother discovered you missing, they were frantic and raced out to look for you.

You were off on an adventure. Thank goodness, a kind couple found you walking alone although they did not believe the two teenagers who said you were their sister. They took you to their nearby house where they called the Sheriff’s office who brought you home with your brother and sister. They were all waiting when your dad and I arrived home: a sheriff, your brother, your sister and you.

I think about the curiosity you always showed. You loved tot explore and comb the creeks and fields and were up always up for an adventure. You were curious about the world, ready to explore what was out there. I don’t think I ever told you how much I admired that adventurous spirit of yours. I miss you in so many ways and that is just one of them.

Your courage throughout your life was a gift to me as certainly as the lilies. The lilies you gave me bloomed and I remembered how you gave the flowers to me in your quiet, nonchalant way.

Now my life is another kind of adventure. I think about how you influenced me and still do. My life now is not anything I wanted but it is mine and I bring you with me every day. I bring you with me and sometimes I like to imagine that you are off on some grand cosmic adventure. Other times I just miss you.

I wish I could call you to tell you the lilies you gave me decades ago had bloomed. I tell you in my thoughts and I write it here.

A friend whose own daughter died and I have been writing to each other through our grief. I am so grateful that I have someone outside your dad, sisters or brother to honestly share my broken heart with. She too can’t figure out how to live with this terrible void in her life. No one wants to hear the sadness that is always there except another grieving parent who actually understands.  I suppose to others we are adjusting, painfully too slow for those who have never lost their own child.  There is always a push to bloom again.

All I can say is that I live in two worlds now. The one in which I try to pretend to be normal and the other where I miss you with all my heart.

Love,

Mom

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Sad small world

The day of my daughter’s birthday I had to run an errand to a local and small UPS office. The woman behind the counter wore a necklace with a butterfly backdrop and some other oval charm on top. I wondered if she was also a bereaved mother, but I didn’t ask.

She asked me what I was mailing — I said the box had cards – and she asked me if I made my own cards. I decided to tell her the truth — that the cards were business cards as there is a group of us who have lost our daughters to pulmonary embolisms from their birth control and we had formed a group to try to educate people. She paused and said she was in a group years ago where another mother also had a daughter who had died from pulmonary embolisms.

My openness enabled her to be open. I learned that her son Josh had died five years ago at the age of 24. She was also a grieving mother. We opened up to each other and I learned that she used to see the same therapist that I am seeing now.

Small world.   Small and very sad world.

I originally just wanted to write today and say that this f*!king hurts, more than I can even begin to describe.

Was my daughter’s birthday painful?

Yes.

Was the day before or the day after painful?

Yes.

Have I survived?

Yes.

But sometimes I don’t want to.  I survive for others, not yet because I want to survive for myself.

In two years of grieving I’ve discovered that there is no day that my heart doesn’t hurt. If I say this aloud to people they look awkward and uncomfortable.

I am learning to tuck the pain into a private part of my heart because people who haven’t lost their child don’t want to know. Those of us who actually know this pain talk openly. We aren’t awkward and uncomfortable. We talk and we listen.

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Your Birthday

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A short message because I want to say something about your birthday.  It’s the third one without you. It seems so long ago that we were together and in other ways it was just the other day. I received messages from your good friends who remembered it was your day.  It was so kind of them to reach out to me to let me know they miss you.  We all do.  No one will ever miss you as much or more than your dad or I will.

We went out for Mexican food in your honor.

I am posting a photo of this Ho Tai statue that I got because it so reminds me of you, of your enthusiasm for life. I try hard to keep your passion for life and kindheartedness at the forefront of my thoughts. Unfortunately, deepest grief is always just below the surface. I am posting two photos of where my heart rides now on this roller coaster.  Most days I am at one or the other end of this spectrum and occasionally in between.  My love for you and this sorrow both just don’t seem to end and I don’t think I ever want them to.

 

Angel of Sorrow

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