This isn’t goodbye …

…but likely I might disappear even a bit longer than normal.

Not to worry … I am just debating a trip after my next … my 6th treatment.

After this last round … I am exhausted.  But the week of blech has started to pass by and I was able to get up and about in the past 2 days.

And my 6th scheduled round of treatments … once I am done, well … Michael heads back home.  I may take a skip over the pond with him for a few.  So if you do not see me for a while, not to worry.

Oh, you may have noticed I have paired my blog site down a bit, removed some of my past blogs.  Tis a personal reason … but I wanted to leave the last few I did up.

I hope you are all doing well … I miss gabbing with you all.  For now though … I need to take a little journey …

Watch for me though … I’ll be there when you least expect it.

*warm smiles*

Love,

Katie

Update … and A Work Visit

I’ve gradually felt better these past few days.  My appetite has returned.  The dietician that spoke to me while I was in the hospital has put me on a high protein diet.  Basically I’m being fattened up prior to my next treatment (this coming Thursday & Friday).  And in the past day or so I’ve been eating like a piglet.  *makes oinky noises*

Much of my meals now consist of lean beef, turkey, pork, or high protein non-meats.  I’ve had to adjust to this. Some of you may know that I eat fairly vegetarian.  So switching to becoming a meat eater was … hard.  Friend Amber put it best to me though.  “Treat eating meat like taking medicine.  It’s something you have to do.”

And she is correct.  And so I eat.  And eat.  And eat …

However, it is a balancing act as well.  While I am in need of protein, if the fat content is too high I will likely run the risk of increased nausea after treatment.  So after today I taper off a bit.

Still, I’ve gained 7 pounds since going in to the hospital.  I’m halfway back to where I was prior to losing weight.  (I had lost almost 11% of my wt in the span of about 2 weeks.)  In fact, as I sit here typing, I am stuffing portions of ground turkey – quinoa forkfuls in my mouth.  Yes, an attractive site in your mind I am sure.  *grins*

Admittedly I am a bit anxious again for this week.  As I mentioned, this coming Thursday / Friday I am in the infusion center again.  You’d think I’d be “used to it” by now.  But you don’t get used to it.  I mean, I know what to expect.  But that is different from getting accustomed to the effects.  I’m not sure about others, but for me it seems as if the effects of each treatment are not easing, nor staying the same.  It appears that the effects are cumulative.  Each succeeding treatment blechy’s last a bit longer than the previous.

Still, the upside is that this will be my 5th cycle.  I am … was … scheduled for 6 of them.  I may be almost done with them.  Unless my plan changes … which there is some discussion on.  There are a few tests and scans that are regularly performed to monitor progress.  One such is call a CA-125 test.  It’s a protein that is used as a tumor ‘marker.’  A CA-125 number of 35 and under is considered “normal”.  Movement of this number up or down doesn’t necessarily indicate much, unless the number moves drastically.  Halving.  Or … doubling.

My initial number was well into the mid hundreds and dropped to ‘normal’ after the surgery I had done several weeks ago…but has since risen again.  And for the past two tests has hovered at 110.  We’ll see where it is after this next round of chemo.

I feel stronger today, so I am pretty hopeful.

In fact, I decided to drop by my workplace today.  It has been weeks since I have even thought of work.  Seeing friends and co-workers was wonderful.  And … bonus – I brought my brother Michael along (and his girlfriend too).  As we met a few people more than one said,

“Oh, you’re Katie’s brother.” … or something to that effect.

Hehe.  *fist pump and smug look on my face*

(If you’re new to my blog posts and wondering what I’m going on about … errrr … apparently I suffer from invisible sister disorder haha.)

My desk is still there too (albeit someone else has been filling in for me, and it looks to be more her desk now).  I was NOT tempted to do any work haha … though I did ask if they had trouble figuring out all of my various spreadsheets.

At any rate, it was a nice outing.  Fresh air the past couple of days has done wonders for my mental state.  I’m thinking that perhaps tomorrow we can get some sightseeing done (as Roisin leaves in a few days), and perhaps eat at the brew pub for dinner.  That would be nice.

Katie

PS – I’ll likely disappear again for a week or so after Thursday/Friday.

Just a quick visit … hope all is well with everyone

I have been gone a while.  Some of you have emailed and sent kind words … I thank you.

I may not be able to respond as much as I wish I could … and sometimes I repeat things now.  My memory feels foggy most times … though today I feel a lot better.

The other week … last week, or is it the week before? Anyway, a set back.  But just that.  It kept me off my feet for a week, perhaps a little more.  But I am home again and feel a bit better.

My brother is still here.  His lady friend has also come for a visit.  That is nice as it gives Michael some relief and additional company.  He is Irish after all, and whilst he can talk to the shadows as well as any, having another to listen puts the gab in his tongue just that much more.  I can see the sparkle in their eyes … tis a grand thing to see.

I think I am rambling.  But that is fine for now.  I am thinking, perhaps when this round of treatment is done I will go back home for a while.  We shall see …

Anyway, I am still here.

My Toast Is Raw

Hey all …  *waves*  I’m still here.  Still fighting.  Yahhh.

I admit, I had a horrible last week after treatment, but have been feeling better the past few days.  Between the recent surgery and the blechy chemo effects last week I have been basically sidelined.  Sleep when not nauseous.  Sleep because I am tired.  Sleep because I could basically do little else.

However, a day or so ago…two days?  Anyway, I was finally able to keep down some solid food.  And my wonderful brother has been … well … wonderful!  He has been making me little things to eat now that I am gaining my appetite back again.

Yesterday however, I wanted some toast.  Just toast.  Nothing special.  I placed a piece of bread in the toaster, then went to sit for a bit while I waited.

Waited for my lovely, tasty toast.

And waited.

Hmmm … my toast is taking a bit long …

Checking on it, I popped the cancel button.  Out popped my uncooked toast.  Raw toast.  Bread.

What the … ?!?!?!?

Then I looked and saw that the plug was pulled out of the socket.  And then it dawned on me as I went about the house seeing a lot of the plugs out of their sockets.

Michael, as he was going on about his daily business and helping me out, was unconsciously pulling them out the wall.

Uhmmm … you are confused I see dear reader.

Well, back home (in Ireland) we tend to unplug our appliances and such (at least in our household) as electricity is rather expensive.  (Even when not in use, residual electricity gets used if your appliances are plugged in.)  Here in the States we tend to take such things for granted at times.

Image

At any rate, my toast is now toasted … and I am debating on whether to let Michael know he does not have to unplug things … or whether I get back in that habit myself.

Now … where did he put the peanut butter …

Michael and the Pub – 1 Year Later

About a year ago I wrote a blog post regarding the first time Michael came to visit me.  It was a story about going out to dinner at a nearby pub and how I was just a tad miffed it was so cool how they could remember Michaels name after just a day of him being there.  He is friendly that way Michael is.

Actually, if you want to read the original blog post it is here:  Michael and the Pub – Last Year.

I think this is the first time I have self-promoted a blog post of mine.  Woo woo lol.

Anyway, as Michael is visiting again, the pub has been on the list of places to have dinner at (in addition to the list of places where Michael can have a pint at).  He has been there twice since being here … and I went once with him.

Note – I do not drink.  And even if I did, I am not allowed to at the moment.  But the pub does have WONDERFUL food.

Anyway, the first night Michael went there during this trip he told me he walked in and that they remembered him.  *makes scrunchy face*

“I bet they still don’t know my damn name yet,” I thought.

Finally I did go with him to the pub last week for dinner.  When we walked in and sat at a table the server came and asked if we wanted something to drink.  Michael ordered a pint.  I ordered my usual diet soda.  Then the server stared straight at me and I saw her eyes flash with some recognition.  She said, “Katie, is that you?”

I believe she was taken aback by the cancer thing.  (I was wearing my head scarf.)  We spoke a bit.  I think that was the first time someone there remembered my name! Wooo woo.  Victory is mine!  Take THAT oh brother of mine.  Heh.

After the server walked away the bartender walked by and said to my brother something like, “Hey Michael, good to see you again.”

Then he turns to me and says, “And you’re Michael’s sister right?”

Fecker.

Score:  Katie 1 pt.  Michael 1 bazillion.

Feckers.

hello-my-name-is

(PS – I have treatment today and tomorrow, so will be gone a few days again.)

When At First You Don’t Suceed, Tri, Tri, Tri Again

I have not posted for over 2 weeks now … ack!

So an update on a goal I had set.  Back in early June I told myself that I was to do a triathlon.  A Sprint Tri mind you, not an Iron Man.

It was a good goal.

Half mile swim – Twelve mile bike – 3K run

But as many of you know, I have had to put this goal off.  Not drop it … put it off.  For a little while.

Since I could not participate in the Tri, the next best thing was make sure I at least attended it to cheer other people on.  But, a recent set back with the cancer even caused that plan to be in jeopardy.  I was going to be 2 weeks out of chemo and should have been good enough to get to the event to watch … but my surgery date was pushed up.  So for the past 2 weeks I have been somewhat out of commission.

But the past couple days I have finally started to feel better … so yahhh!!!  I made it there.  With the help of my brother, we were able to drive there yesterday.  (And he is now pretty comfortable driving on the ‘correct’ side of the road haha.)

It was the 2013 Wahine Tri I signed up for back in June.  (An all women’s tri event.)  I only had enough energy to stay and watch the start of the race, but it was good enough and I was able to cheer them on as they got going.  It was great watching all the people who had trained so hard and who looked very excited.  This makes want to do this event so much more.

Next year … nod nods.  Next year I want the following Finisher’s Medal … which looked totally awesome …

2013-Wahine-Medal

This time next year, just Tri and stop me.  Just Tri baby … Just Tri.

Fight Like A Girl

Yesterday was my 2nd treatment.  It was a long day and I was … still am, totally exhausted.

Today though, I got onto my blog for a little and changed it up a bit.  I made a new gravatar.  Then later, I made a new banner for the blog page.

When I first mentioned and wrote about the cancer I was pretty sure I was not going to talk of it much.  But, I find I am doing otherwise.  Because it gives me something to do.  Something to help me fight.

At the moment I am feeling okay (1 day after the treatment) … but already I can feel the beginnings of the nausea coming on.  And I don’t want it to hit me … though it will.  And it totally sucks.

But part of me tells myself that is okay.  That is part of the fight.  At times I will not be able to bring myself to do much.  Definitely getting online in the next few days will pretty much not be on my list of things to do.

But when I can make myself do something, I will do so thinking, “Take that you damn cancer.  Screw you nausea, I will eat.  Yes my stomach feels like vomiting, but I will get up damn-it.  I might want to just lay in bed and cry, but I will not shut out the world.  Take that cancer – FUCK YOU.”

I think I will rest some now.  I am tired.

But not too tired to fight.

FightLikeAGirl

#2

Important Announcement – People are nice.  People at work.  People in my neighborhood.  Family People.  Ex-husband people too.  And also, Blog Land people.  Thank you all for the warm thoughts, emails, encouragement, and just … thank you.

#2 Announcement – This Thursday is the 2nd … or #2 treatment week.  So likely I will be gone for a few days again soon.  I am finding that I am also gone several days prior, as I like to have things ready at home, knowing I will not want to cook or clean or get the mail or much of anything.  So in days leading up to treatment, I find myself scurrying around making little pre-prepped meals, washing and cleaning everything I can think of, arranging for pick-up of things I will need (meds, mail, bill paying if they come in whilst I am blechy, etc.).  In short, my anal-retentiveness goes into overdrive.  You should seriously see my spreadsheet for tracking things … I made check boxes about how I feel on a given day … check boxes for meds needed/taken/etc.  Color-coded too.

It is interesting … I REALLY thought I was not going to blog about these things at all … hmmmm …

Item # 4 – I almost forgot … I got stuff in the mail.  I am not sure if you would call them ‘fun’ things.  But … a hat and 2 scarfs.  I also ordered some things to go along with them … accessories so to speak.  Something called a halo … tis sort of like hair for the outer fringes of the hat.  And some other similar under hat or under scarf items.  One was even on sale.  Woot woot.  I also did get my hair cut short this past week.  Not real short … admits, my initial notion that it is ‘just hair’ and will grow back … I understand that.  But I was not … am not fully … okay with it.  I know it’s just hair.  But … it is my hair.  And I have no control.  Getting it shorn on my own, buying the hat and scarves … tis a way to take some control back.  Some control.  Only some.

Note #5 – Did you notice there was no ‘Item #3’?  Just checking to see if anyone is paying attention *smirkles*

Totally goes rogue and lists announcement # purple (which might confuse you as I am highlighting it in green) – My brother gets here in just about 3 weeks. Yah!  But he asked me if he should bring a bodhran.  A bodhran is a sort of drum…that you hold in one hand and beat a stick on.  It’s an Irish instrument.  When he asked me this (today on the phone) I was totally confused.  Why on earth would he bring one?  That would seem to me akin to asking any one of you out of the blue, “Hey, can I bring a bowling ball over for movie night?”  It just didn’t make sense.  But he explained that he thought on nights when I was feeling okay we could go over to the pub and listen to music and he could join in.  He is learning to play the bodhran.  *rolls my eyes*  I had to tell him the pub is not like the one he goes to back home where people drop in for a play.  For those of you who have read my blog post about Michael and the pub … feel free to roll your eyes too.  Still, I told him to bring it anyway.  He better not be banging on it when I am feeling crappy though. Heh.

And with that … thinks I will take a look at a few more blog posts from others before tending to more food prep.

And again … thank you very much everyone.  I hope you are all having a good week.

K

Happy Anniversary – Inspirations of You

Today is my 1 year WordPress blogging anniversary.  Heck, it’s my 1 year anniversary of blogging period.

In honor of this, I am sort of re-posting something I did near a year past, a blog in which I had a link to a video of Randy Pausch’s “The Last Lecture.”  I was very new to blogging, but even then I knew that this blogging venue was a good medium, a good tool to convey not only my random thoughts, but the ideas and genius of others.

Randy Pausch is one such person whom I think falls into the category of genius and the human incredible.  I have admired him for a long time.  I never met him.  I only know him through book and video.  But he has been instrumental in how I have often tried to live my life.  I re-linked his video below once more.

In truth, I know many will not view it.  Not because they do not want to, but because of it’s length.  It is over an hour and fifteen minutes long.  It is a lecture.  And a damn good one.  In it, he talks about achieving his childhood dream … and how others can achieve their childhood dream.  I don’t wish to go into too much detail here, for I can never give a review of his words that would do him any justice.  He is THAT good of a speaker.  THAT inspirational of a person.

Nevertheless, a few words I do wish to mention regarding this particular lecture.  Near the beginning of his talk, he mentions something he calls the “head-fake”.  The head-fake in this context is sort of when you think you’re learning a particular lesson, when in reality, a totally different lesson is being taught … if we can see it.  If you can only watch a portion of the video, watch at least the first 5 minutes, then the last 5 minutes.

So why am I re-posting this particular link for my anniversary blog post?

Several reasons …

1.  First and foremost, the way this man lived his life, up until his death, inspires me to try to do the same.  Randy Pausch was diagnosed with pancreatic cancer in 2006, and in August of 2007 was told he had 3 – 6 months to live.  Even though he knew he was dying he lived his life the best he knew how.  I still have much to learn from him …

2.  I have considered the what if’s of my situation.  I know many of you have not wanted me to think of the what if’s.  You have asked me not to speak that way.  But it is a potential reality, and I cannot afford to sweep it under the rug.  I plan to live a long life, make no mistake of that.  But … I have a child to think of as well.  I will not abdicate my responsibility to her well-being.  And that means setting in motion certain life decisions … just in case.

3.  One thing I have been wondering on is, do I leave letters for my daughter?  A video perhaps?  I came to the conclusion that I would not.  I think back to my own mother … and older sister.  Would it make me feel better having a note surface from my mum?  A Christmas gift long tucked away from Orla delivered?  And I think no.  If I am to give my daughter memories, let them be memories of now.  But re-watching this video … makes me re-think this decision.  What do I do?

Now before anyone tells me that I am being morbid or dark, I would like to say that it feels just the opposite for me.  I have no idea what my future is at this moment, but what I do know is that I don’t want to hide from life.  Randy said it well, “We cannot change the cards we are dealt, just how we play the hand.”

So with that said, I am playing my hand as best I can.  This weekend I was invited to have a weekend away.  A friend invited me to her place and I am taking her up on it.  Yahh for a weekend getaway.

But … did you see the head-fake?

This isn’t really about my anniversary blog post.

It’s about living my life.

 

Support From Friends Is Wonderful (Damn-it) … or … Was I Really Going THAT Slow?

Soooooo.  I was having a discussion with my friend Amber today.  I had mentioned that I actually went on a bike ride.

Yahhhh! Finally!  I have been missing riding so much.  I want to ride soooo badly.  So I did.

But I took it REALLY easy.  I did not go far.  I did not go fast.  My daughter and I rode to a coffee store.  It was about 1 ½ miles away.  It took ‘us’ about 15 minutes to ride there.

Fifteen?!?!?  Is that fast you ask?  Or slow?

Well, until I had to give up my Tri goal this year, I was training on longer and longer rides.  I was able to sustain a 20+ mile ride easily at 15 – 18 mph.  Sometimes on long stretches of flat, just over 20 mph at times.

Working the math on that … a 1.5 mile ride would really have normally taken me only about 5 minutes.

So … slower.  NOT slow.  Slower.  Damn-it.  *fake glares at you all*

Oh, I forgot to mention, when riding to the coffee shop, my daughter would zoom ahead.  She would also ride around a block or two, and come around and ride with me.  Then zoom off again.  Feckin kid.  I should send her to bed without dinner.  I mean c’mon!  She obviously already has too much energy.  Damn kid.  *grumbles*  (But not really grumbling *smiles* … still … damn kid.)

So why the title of this blog post?

Because.  After I told this to Amber.  She said,

“LOL.  She is funny.  Doing circles around slow poke mom :)”

*Offers Amber some licorice … juuusssttt out of her reach*

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