Not Deaf

Why do I have to answer the question “Oh, do you sign?” after I have said, in immaculate spoken language, that I am hard of hearing?

Why did the DVO assume I sign and schedule me with the deaf counselor when I called via relay? 

Why do prospective employers ask if I will need an interpreter?

Why do websites which talk about employment issues for the “deaf and hard of hearing” usually limit the discussion to the availability of sign language interpreters?

Why did the audiology students in my doctor’s office keep using rudimentary sign with me, even after I heard the audiologist with my eyes CLOSED?

Why is that when I say “I am hearing impaired” for the sake of the many many people who do not recognize the term “hard of hearing”, people assume I am deaf?

Why is there no discussion on the specific difficulties of hard of hearing people?

Why?

I Still Hear New Things!

Oh yes! I just heard the sound Anton’s towel made against his wet hair! I don’t think I had heard that before! Yipeeeee!

You go, HLAA!

The Hearing Loss Association of America submitted comments with the US Department of Justice in regard to the pending changes in the ADA.

I was especially happy to see that the HLAA recommended that all shows at movie theaters offer captions!!! Wouldn’t we all love that?

Let’s hope the Department of Justice takes this into account!

Update

I told my counselor at the BRS that the staffing agency is not returning my calls. She left a message with them, and on Monday they returned my email. The guy explained he was ill and that’s why he did not respond to my emails (?!). No, no problem communicating by email, he says, but right now there aren’t any jobs available. But we do get jobs like the one you want all the time, so let’s keep in touch.

Oook.

I want a job more than I want to file complaints for discrimination, so I will wait and see what happens.

And Again!

On Tuesday, I submitted a resume with an employment agency, which was advertising a position I liked. On the next morning, I was contacted by a guy named Kyle whose email said he has exciting opportunities for me and I should email him or call him. I emailed right away and expressed my enthusiasm. His response arrived about five minutes later and contained a request to call him. I disclosed my disability and requested that we communicate by email as I have a hearing disability. Did he email back? Nope. I gave him till today at noon and emailed him nicely, offering to come into his office, if that’s what he would like. Did he respond? Nope.

What’s a woman to do? Promptly file a claim with the EEOC! I will just wait until my job developer calls him and tries to ease his ignorant mind. If she doesn’t succeed, or maybe even if she does, I will be filing my claim. Have fun, stupid employment agency!

Discriminated, again.

I got on the wrong train to New York this morning – the local instead of the express – because the train station does not provide visual information about arriving trains. So when they schedule the 8:16, the 8:18, and the 8:21trains on the same track and only announce “mmgmfmfmgmmgmmmm is arriving on track 5”, no wonder I got on the local and got to work 15 minutes late.

I wish I didn’t have to deal with this.

Hello? Anyone still reading?

I doubt it, but.. let’s have an update.

I have not posted for more than a month. What have I been doing?

Working. My internship grew into a full-time job running program support for an economic and social rights group in Manhattan. I am loving it! Unfortunately, unless we land a big grant soon, I will have to find another job.

I commute two hours a day, usually in crowded subway and commuter trains, but I am well-trained. I have been elbowing my way through various forms of public transportation since second grade!

Moving. We just moved to a new apartment in Stamford. It’s a love nest, but next time I move, I am hiring professional movers and half a dozen cleaners.

Grantwriting. I landed a 80, 000 euro grant for a small group home for children with disabilities in Northern Bulgaria. This is my biggest grantwriting achievement!

Visiting Oregon. We spent a week in Portland with our college buddies, doing the vacation thing – sleeping in, drinking coffee till noon, walking around the city, cooking delicious food, closing with tequilla shots. Portland is truly fantastic, accessible and pleasant to everyone. Let’s all move there where Christie says the funniest things, Ben builds bookshelves, Drew packs yummy stuff for everyone and Max the Cat nuzzles your face.

Loving Anton. Yes, four years of mad love. An eternity to go.

On the hearing scene, nothing new, really. I just got the Phonak MicroLink and for now I find it the biggest pain in the ass. I will try to write about all other things I find a pain in the ass soon.

Still Trying to See the New Indiana Jones

That’s right, my gentle reader. 21st century, the United States of America, country with a GDP of $13 trillion, origin of many human rights instruments, takes pride in its civil liberties, home to a deaf woman who has no access to the new Indiana Jones flick.

This past Friday I could not find a captioned showtime. Last night Anton and I found a theater with rear-window captions on the 9:55p screening. Anton called to confirm. Did I mention this movie theater is in another state? Yup, it’s the Cinema de Lux in White Plains, New York! So at about 9:15 we loaded into our (fuel efficient) Honda, persistently broke the speed limit and at 9:45 were buying tickets. We asked the adolescent employee for a window for the captions. His eyebrows furrowed. He made a call. The window will be with the manager down the hall, he said. Down the hall was only an empty desk. We still caught some employee by the sleeve and asked for the window. He had no idea what we are talking about and anyway, the 9:55 isn’t captioned! He called another employee who had a similar response. Anton was ready to punch someone.

The manager finally joined the show and informed us the captioned showtime was switched around because they had technical issues. Haaa? They just switched?! At this point I took the scene with an angry diatribe on the availability of captions in the state and on my prolonged attempts to enjoy the simple pleasure of seeing a movie. I finished in tears. Anton took on and mentioned the ADA and the attorney for the district. And the manager was sorry and I think, realized his mistake (and he better remember that realization!) and offered to caption a later show. But, my mood was ruined and I still had to get up at 6am. So we said no and got our money back. And some complimentary tickets.

I am not letting this be. Still, I have a feeling lots of hard of hearing and deaf people let it be. Look, even if a movie theater around here has the necessary technology, they are not ready to use it and they don’t really understand how it serves the hard of hearing and deaf audiences.

I am so disappointed. Where I grew up, a sorry little country, I was constantly reminded I am a second class citizen. Nothing was available to me. But here, in the US, I see all these things that are for me and I can use them. My expectations go waaay up and I fall hard when I don’t get what I was promised.

Movie Theaters and Captions in SW Connecticut

I am livid. I want to see a movie. But I can’t.

Movie theaters in Fairfield county (between New Haven and New York) closest to out town do not caption movies. They just plainly do not. A few, 20 to 45 minutes away, caption one movie at a time, but only at selected screenings, usually at dead times in the morning and at noon. And there is one 50 minutes away which has rear-window captioning.

This past Friday evening Anton and I, like millions of Americans, decided to see the new Indiana Jones flick and we did not want to drive very far for it.  Since all the captioned screenings for the day had passed, Anton decided to call the Stratford theater and ask that they, pretty please, turn on the captions for me at the 9p screening.

The answer was a stubborn no. The corporate office of the Regal Stratford Stadium does not allow unannounced captions, because, as a rule, more people complain about the captions being on. But we were informed that’s all ADA compliant. So, deaf lady, you get to watch whenever we don’t have many customers (12:45p and 10:45p on a workday, 4p on a weekend) or you don’t watch at all. It was degrading. We didn’t go to a movie. But I decided to take action!

I would like to raise up a stink to make local movie theaters get rear-window captions which suits both the deafies and the ridiculously ridiculous people who complain about the captions (I mean really, how spoiled and self-centered do you have to be to complain about somebody else’s accommodation?).

I emailed the local chapter of the Hearing Loss Association of America asking if anything has been done about this situation before and whether it is as frustrating for the local HoH flock as it is for me. So far no response. I hope I will not have to hunt one from the headquarters, because the local chapter is snoozing. Please, hard of hearing folks of SW Connecticut, do not disappoint me!

One Year Anniversary!

Thanks to everyone who posted supportive comments to my last post. You guys are great!

So, it’s been one year since they put the implant in my head. This Memorial Day weekend we were in Maine, hanging out with old friends from college. I was thinking how last year on Memorial Day I was dizzy out of my mind, wearing an uncomfortable white bandage and popping Valium and Percocet. As my husband said, I’ve come a long way.

I have come to terms with the fact that the phone is out of the question right now. I didn’t have much success with the CapTel. I was using it exactly like the relay service, waiting for all the captions to appear. That did unnerve the people I tried speaking to. We are going to move to another apartment soon and I think I will return the CapTel.

My internship with a New York social and economic rights group has been going ABSOLUTELY GREAT! I am communicating well within the office, but still, conversation in noisy areas is tough.  I was walking down the street with my supervisor on Tuesday and she told me she is pregnant in the context of telling me about her vacation plans.  I understood someone in her family is pregnant so I just smiled. Man, she was telling me SHE is pregnant. I am lucky I had a chance to get that straight and express my happiness with the news. Sheesh, I was so embarrassed.  So situations like this happen. I should have learned to completely let them go by now, but I still go through a few minutes of embarrassment.

The greatest news is that the Connecticut Department of Vocational Rehabilitation is giving me a job developer to take the calls from prospective employers, disclose my disability and advocate for me! I haven’t yet met with the job developer, but I hope this arrangement works out for me. I am so ready to work, even overwork myself!

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