It’s been a while since I’ve been here, but I needed to have an outlet for all of my feelings and frustrations following my recent bilateral, multiple pulmonary emboli. Looking so normal on the outside, going to the ER with nothing but pain, I feel like I should feel normal. After all, I didn’t collapse, I didn’t have any other symptoms other than the extreme pain. But it doesn’t matter. PE recovery is going to be long and a struggle.
Today I am really frustrated with the fatigue. I have a lot of interests that don’t require a lot of energy: reading, writing, Cricuting, learning, baking, but even those activities are too much. For over a week I’ve been wanting to bake the same cookies, and everyday it’s just too much. I slept until 11 today and have been exhausted all day. I didn’t even have the energy to blow dry my hair, so I’m resting, hoping to have the energy to at least get that done. And I think out of sheer stubbornness, I will at least Cricut so I can feel like I’ve done something today.
From everything I’ve read, fatigue is very normal, even if it is frustrating. There’s nothing that can be done about it. The body is healing. And since I have multiple clots in both lungs, my body has a lot of healing to do. My oxygen saturation is low, my heart rate is up, as is my blood pressure. All of this is normal in the recovery and healing process, but it’s taxing as well.
I’ve also been frustrated with my mom. I’ve known how she is, self-centered, not really a mom, but this has been a new low for her. She missed a planned trip out here, even though I’d had the PE’s. I would think normally a mom would want to see her daughter after surviving a life-threatening ailment. Not mine. And last week I was back in the ER with the same pain and some new findings on the CT scan. My mom didn’t find out until much later, and she texted. I told her everything…and didn’t hear back from her. She finally called Saturday and talked for 4 minutes. She gave me all the usual excuses: “I HAVE been very worried about you. I’m sorry I haven’t called. I just have friends in the hospital and I’ve been busy.” She’s retired and wintering in Florida. Her friends are 85 and have not been lifelong friends. They’re not recovering from a life-threatening ailment. And, I’m pretty sure she can break away for 5 minutes to call me and see how I’m doing. I think the only reason she called is because my aunt had called her to get information and my nom couldn’t answer her questions. I think my aunt was appalled. In addition, my mom’s friends were asking questions that she couldn’t answer, and that’s embarrassing to her. So she called, and she wanted an update after my appointment with the lung doctor.
So I texted her the update from my lung doctor. I have lung damage that looks “peculiar”. I’m following up with him in a month. And, I haven’t heard from her. I get frustrated trying to deal with her, deal with her excuses, her constant excuses. The rest of my family has been calling and texting and are very worried. Even my in-laws! But she can’t be bothered. I don’t want to be a bitter person, but I’m tired of her antics, her games. I’m tired of letting her get away with her excuses. It’s pure bullshit that she cares. We all know what caring looks like and that ain’t it. So we’ll see how I handle her if I hear from her again.
So that’s my rant for today!