This week’s post is part of A Chronic Voice's November Linkup Party which is a monthly get together for people with chronic illness to share and learn from each other's experiences. November's Writing Prompts were: Discovering Rediscovering Anticipating Decluttering Cherishing This month, I will be writing about what I have been up to recently...
Have you ever been a bit too overambitious and used up way more spoons than you have? Have you ever tried to cram too much into your day, despite the fact that you know there would be consequences if you did? Well, that’s what’s happened to me these last few weeks, and as a result, I am EXHAUSTED!! I’ve spent the last week recovering from my error in judgement, and I’ve been thinking of what compelled me to bite off more than I knew I could chew. Was I testing my capabilities? Maybe. Or was it something else?
I often talk about the emotional challenges I’ve had with MS, but I’ve only really hinted about my cognitive problems. So in this weeks post, I’m going to go into a bit more depth about my cognitive issues and how I deal with those...
This post is inspired by Shift MS’ Youtube channel MS Reporters. MS reporters is a video library chock full of amazing content made by MSers for MSers, and I'm just loving this resource! They have a comprehensive video collection for people who are newly diagnosed where experts share three things every newly diagnosed MSer should know, and it got me thinking, what would be the 3 things I would say to someone newly diagnosed with MS? There were just so many things that came to mind, but when it came to narrowing it down to just 3 things I immediately focused on one of the hardest things I had to deal with: The emotions of being newly diagnosed.
This weeks post is part of A Chronic Voice's October Linkup Party which is a monthly get together for people with chronic illness to share and learn from each other's experiences. October's Writing Prompts were: - Inspiring - Dreaming - Reducing - Creating - Listening My response to this month's writing prompt is about how I maintain motivation despite my MS.
For me, one of the most confusing things about Relapsing-Remitting Multiple Sclerosis (RRMS) was understanding if I was experiencing a relapse or not. No one tells you what a relapse is and isn't, well no one told me that is, and I'm sure I'm not alone. How do you know if you might be experiencing a relapse? And at what point do you seek medical attention? When I was first diagnosed, I was only told that “if I experienced a relapse”, I had to let the neurologist know. But what exactly was a relapse? Is it when your symptoms come back?...That was my understanding of the definition of a relapse at the time. A relapse is when I'm experiencing symptoms right? Wrong! There's a bit more to it than that.
When you're diagnosed with a chronic illness, you are suddenly thrust into an unfamiliar world, and it doesn't come with a user guide. All of a sudden you're feeling like you have lost control and you're left wondering if you will ever get it back. When I was diagnosed with MS, I found myself searching for ways of coping and navigating life with this illness. Over the course of my MS journey, I have discovered skills that have helped me recover control in my life. Skills that put me back into the driver's seat. Today I want to share some of the things I have learnt that have made the biggest impact towards recovering control of my life.
Have you been diagnosed with a chronic illness and are struggling with the notion of whether you should tell people at work? Are you wondering if you should tell your boss? Do you know if you are even obliged to disclose your condition? Or would you much rather keep this information private and separate to your work? I was faced with these very same questions when I was diagnosed with Multiple Sclerosis (MS), and it was something I struggled to find an answer to in the first few years of my diagnosis.
This weeks post is part of A Chronic Voice's September Linkup Party September's Writing Prompts were: Resisting Learning Struggling Supporting Changing In this post, I share 5 important milestones in my MS Journey. From struggling to accept my diagnosis to learning about my illness and accepting change. I hope you enjoy this post and find some solace in knowing that no matter where you are in your journey, change will come.
In this post, I share 5 blogs I follow which have helped build my spoonie community and provided me with a sense of belonging I had longed for and have become the foundation of my spoonie community. Being diagnosed with a chronic illness in your 20's can sometimes be a lonely place. I would often find myself in situations where there was no one around in my age group. Therapy and support groups in my community were targeted to retirees, I had no one I could really relate to. That all changed when I started blogging and found that I wasn't alone,
The Millennial Patient 