Let me not tell you something…
January 14, 2014 Leave a comment
Two things you will never hear me say here:
#1 “Where there’s a will there’s a way.”
#2 “Nothing’s impossible; the word itself says ‘I’m possible’.”
My name is Stephanie and I’m a member of Anti-Platitudes Anonymous. Platitudes are ignorant at best, cruel at worst. Essentially, they all say “If you’re suffering it’s your fault. You can change it if you use you’re smart, use your willpower, and think positive.” Translation: if you’re suffering, you’re stupid, weak, unwilling, and negative.
In this age of disability awareness platitudes need to be kicked to the curb. Not all disabilities = suffering, but many do. Not all circumstances can be changed either. Telling a depressed person to “pull themselves together by just exercising more and eating right” is no different than telling a blind person to “just look harder”. Discipline will not cure autism and repetitive lessons will not undo brain damage any more than exercise will heal neuropathy.
I have epilepsy – also not controllable with willpower and optimism – and repetitive falls over the course of twenty-something years have caused lasting physical damage with some increasingly lasting physical discomfort. In the last two years this discomfort has gone from discomfort to pain. I struggled with pain the last year until it reached a point a few months ago where it was constant and debilitating. I could no longer work on my art. In several instances I temporarily lost the use of my hands or entire arms. I could barely get through each day. Finally, x-rays and an MRI on my neck revealed a combination of issues, the biggest one being the one causing the compression of nerves.
I don’t know if I’ll be able to actually cure the condition, but I have received the help necessary to relieve the condition a great deal and reduce the pain by what feels like about 1,000% from where I was a month ago: wondering if life was worth living if that was what my daily life was going to be like forevermore.
And so…I learned. I learned what long-term constant debilitating pain does to a person’s mind and emotions. There is a large group of people in society who struggle with chronic pain. I will never forget that. Before my experience I could only sympathize. Now I can empathize.
On this blog I will save the bulk of my tolerance for people who struggle, for people who suffer, not for people who have opinions and theories about how Those People should be “fixing” themselves, coping better, or learning to “look on the bright side”.
Notice: Anyone who states that “If you want the rainbows you’ve got to put up with the rain” WILL be banned from commenting on this blog.
Further posts will have a positive tone but I know there are a lot of people out there doing the very best they can who have had enough of these platitudes and are silently screaming for mercy. Well…mercy on you.
Blessings…
Stephanie






